Sunday, January 27, 2008

Two Steps Back. This is Recovery?

This is the hardest part of AJ's recovery. The last several days he has been an emotional powder keg. We have had crying fits, refusal, he even had an accident today. It's been weeks since the last accident. He wants to "stim" all day. At the sink, by the washer, the dryer, watching paper or receipts flap over the heat registers, watching flames in the furnace (we have latches to keep the doors closed,) but he will release the lowest one, crack open the doors, peak through the slats of the louvers, anything for his fix. We used to get freaked out during these phases, thinking maybe the supplements weren't working, maybe the pediatrician was right and there is nothing that can help him. Maybe we are making him worse instead of better. Our Dr. U warned us this would happen, but it is still difficult to go through it. As the toxins are released they can cause effects that look like regression, behaviors increase, accidents happen, AJ's temper flares. His body is "dumping" the toxins that were stored safely away in the fatty tissue of his brain and other organs until he was healthy enough to release them. This disruption to his system looks like we are losing progress and the temptation to quit creeps in. Now my wife and I remind each other, "looks like a developmental leap is coming" and we pray we're right. We pray we are doing what's best for him. We remind ourselves all the parents we've talked to who are successfully recovering their kids feel the doubt, all face the fears, all the successful ones keep going. Relentlessly forward in faith. I can't wait to see where his next great leap comes from.

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It covers:

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